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Sickle Cell Initiatives

Grant Initiatives

Ohio Revised Code 3701.131 sets forth requirements for the director of health to:

“Encourage and assist in the development of programs of education and research pertaining to the causes, detection, and treatment of sickle cell disease and provide for rehabilitation and counseling of persons possessing the trait of, or afflicted with this disease …”

To meet these requirements, the Ohio Department of Health (ODH) funds two grant initiatives under the Sickle Cell Services Program related to sickle cell disease (SCD), sickle cell trait (SCT), and other hemoglobinopathies: Sickle Cell Initiative and Sickle Cell Statewide Family Support Initiative.

Grant funds under the Sickle Cell Initiative are provided to (1) ensure and enhance the availability and accessibility of quality, comprehensive sickle cell services for newborns, children, and adults and (2) promote public and professional education and awareness about hemoglobinopathies.

Grant funds under the Sickle Cell Statewide Family Support Initiative are provided to support the provision of statewide education, awareness, and community engagement activities for individuals (adults) and families at risk or affected by SCD, SCT, and other hemoglobinopathies and the professionals who serve them.

Funding for both initiatives is comprised of fees generated from a portion of the state newborn screening fee and distributed by ODH through an established grant application and selection process.

For more information about ODH funding or to view the Competitive Solicitations Proposal Archive Section, click HERE and search SFY21 for Sickle Cell (SK) and/or Sickle Cell Statewide Family Support (SS).

To sign up to receive ODH grant /contract email notifications, click HERE.

NOTE: Any grant award made through the ODH Sickle Cell Services Program is contingent upon the availability of funds for this purpose.

Sickle Cell Initiative

Grant funds under the Sickle Cell Initiative are provided to (1) ensure and enhance the availability and accessibility of quality, comprehensive sickle cell services for newborns, children, and adults and (2) promote public and professional education and awareness about hemoglobinopathies. Support of clinical services is not a funding priority for this grant initiative.

Comprehensive sickle cell services for the purpose of this initiative include, but are not limited to: (1) tracking and follow-up of abnormal hemoglobin disease and hemoglobin trait results, including newborn and non-newborn test results; (2) hemoglobinopathy counseling and disease education for individuals/families; (3) education and resource materials, training, outreach and awareness activities for professionals and the public related to hemoglobinopathies and (4) referral to specialized medical teams and/or resources for diagnostic, preventive, transition and evaluative management of sickling hemoglobinopathies.

Qualified applicants for grant funds are tertiary care or community-based facilities with an identifiable, functional unit or program organized for and capable of ensuring the provision of regional comprehensive services to the target population. Only one applicant agency is funded in each of the six (6) ODH-defined multi-county sickle cell service regions under this initiative.

NOTE: Applicants that apply for funds under this initiative MAY NOT apply for additional grant funding under the Sickle Cell Statewide Family Support Initiative.

Sickle Cell Statewide Family Support Initiative

Grant funds under the Sickle Cell Statewide Family Support Initiative are provided to support the provision of statewide education, awareness, and community engagement activities for individuals (adults) and families at risk or affected by sickle cell disease, sickle cell trait, and other hemoglobinopathies and the professionals who serve them. Support of clinical services is not a funding priority for this grant initiative.

Qualified applicants for grant funds include any community-based 501(C) (3) agency organized for and capable of ensuring the provision of statewide sickle cell services to the target population. Only one applicant agency is funded under this initiative.

NOTE: Applicants that apply for funds under this initiative MAY NOT apply for additional grant funding under the Sickle Cell Initiative.