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Metabolic Formula

General Info

About CMH Metabolic Formula Program

The Ohio Department of Health (ODH) provides metabolic formula to individuals born with metabolic disorders on the Ohio Newborn Screening Panel.  Examples of these disorders include phenylketonuria (PKU), maple syrup urine disease, tyrosinemia, and propionic acidemia.  A full list of eligible disorders can be found in the Eligibility link.  Without these special formulas, individuals, especially infants and young children, may develop poor health outcomes and developmental delays.  Every years in Ohio, 12-15 babies are born with PKU and approximately 10 babies born with the other metabolic disorders that require formula treatment.  It is recommended that individuals with these diseases remain on formula for their lifetime.

Babies born with these disorders are identified through Ohio’s Newborn Screening Program, which tests a sample of newborns’ blood for these and other disorders. The families of babies with abnormal screening results are contacted to receive a confirmatory test. Those babies with confirmed disorders are referred to physicians and dietitians specializing in metabolic disorders and housed in children’s hospitals around the state.

ODH orders the specialized formula, which is shipped directly to the patients' homes.  Formula is provided at no cost to the patient.  Funds to support the program come from a portion of the newborn screening fee, the Children with Medical Handicaps program and the Women, Infants and Children (WIC) program.  ODH provides formula to approximately 300 individuals in Ohio, at a cost of approximately $700,000 per year.

Requirements for participation in the program are listed in the Eligibility link, but include Ohio residency, application to third-party payment sources and being under the care of an approved Ohio metabolic center.

Contact Information

Mailing Address:
Ohio Department of Health
Metabolic Formula Program
246 North High Street
Columbus, OH 43215

Telephone: (614) 466-1361
Fax: (614) 564-2497

E-mail: BCMH@odh.ohio.gov

Clinic Locations

Akron


Akron Children's Hospital
One Perkins Square
Akron, OH 44308
Phone: (330) 543-8792
Fax: (330) 543-3677

Columbus


Nationwide Children's Hospital
700 Children's Drive
Columbus, OH 43205
Phone: (614) 722-3543
Fax: (614) 722-3546

Cincinnati

Cincinnati Children’s Hospital Medical Center
Biochemical Genetics
Division of Human Genetics
3333 Burnet Avenue (MLC: 4006)
Cincinnati, OH 45229
Phone: (513) 636-4760 
Fax: (513) 636-7297

Cleveland

University Hospitals Case Medical Center
Rainbow Babies and Children’s Hospital
Center for Human Genetics
11000 Euclid Avenue, Lakeside 1500
Cleveland, OH 44106
Phone: (216) 844-3936 
Fax: (216) 844-7497
Phone: (216) 292-9597 (after hours)

Dayton

Dayton Children’s Hospital
One Children’s Plaza
Dayton, OH 45404-1815
Phone: (937) 641-3800 
Fax: (937) 641-5325

Toledo

Toledo Children’s Pediatric Specialty Clinics
2150 W. Central Avenue, 2nd Floor - Genetics
Toledo, Ohio 43606
Phone: 419-291-5599 Option 2/Option 2
Fax: 419-291-6468
PRIVATE LINE: 419-291-2334
Pager: 419-218-4530 (available 8-430 MondayFriday)
if after hours please use pager number
216-292-9597

Metabolic Formula Enrollment

The Ohio Metabolic Formula Program will pay for metabolic formula for Ohio infants not eligible for Ohio Medicaid

Disorders Covered by Metabolic Formula Program

  • Argininemia
  • Argininosuccinic Acidemia
  • Carnitine Acylcarnitine Translocase Deficiency
  • Carnitine Palmitoyl Transferase Deficiency Type II
  • Citrullinemia
  • Glutaric Acidemia Type I
  • Glutaric Acidemia Type II
  • Homocystinuria
  • 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency
  • Hypermethioninemia
  • Isobutyryl-CoA Dehydrogenase Deficiency
  • Isovaleric Acidemia
  • 3-Ketothiolase Deficiency
  • Long Chain Hydroxyacyl-CoA Dehydrogenase Deficiency
  • Maple Syrup Urine Disease (MSUD)
  • Medium Chain Acyl-CoA Dehydrogenase Deficiency (MCADD)
  • 2-Methylbutryl-CoA Dehydrogenase Deficiency
  • 3-Methylcrotonly-CoA Carboxylase Deficiency
  • Methylmalonic Acidemia
  • Phenylketonuria (PKU)
  • Propionic Acidemia
  • Short Chain Acyl-CoA Dehydrogenase Deficiency
  • Trifunctional Protein Deficiency
  • Tyrosinemia Type I, II and III
  • Very Long Chain Acyl-CoA Dehydrogenase Deficiency

Requirements for participating in the Metabolic Formula Program

To participate in the metabolic formula program, an individual must:

  • Be a resident of the state of Ohio
  •  Not be eligible for Ohio Medicaid*
  • Receive care for PKU or another specified metabolic disorder at an approved Ohio Regional Comprehensive Genetics Center
  • (For newly diagnosed infants/children) apply to the Children with Medical Handicaps (CMH) Treatment Program
  • Consume the metabolic formula as directed by the metabolic dietitian

If the above conditions are met, the family will be provided with all of the required metabolic formula at no cost.
*For individuals eligible for Ohio Medicaid, the Medicaid program will cover the cost of their metabolic formula. Contact Medicaid directly for assistance.