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Links to Genetics Related Programs, Organizations and Resources

This page contains links to many genetics related programs, organizations and resources available within the state of Ohio and beyond. 

Links to Other Ohio Department of Health Related Programs that Collaborate with Genetics

  • Bureau for Children with Medical Handicaps: BCMH links families of children with special health care needs to a network of quality providers and helps families obtain payment for the services their children need.

  • Cancer Programs: Together with a variety of partners inside and outside ODH, the comprehensive cancer program works to reduce the burden of cancer across programs

  • Maternal and Child Health Program: coordinates an organized community effort to eliminate health disparities, improve birth outcomes and improve the health status of women, infants and children in Ohio.

  • Infant Hearing Program: Coordinates the Newborn Hearing Screening and Regional Infant Hearing Programs in Ohio

  • Heart Disease and Stroke Prevention:  Supports CVD risk reduction activities through a variety of initiatives designed to reduce death and disability from heart disease and stroke.

  • Help Me Grow:  Part of Ohio’s prenatal to age three system of supports, the services offered by Help Me Grow equip parents with the means to help their child acquire the early building blocks necessary for long term success.

  • Newborn Screening for Metabolic, Endocrine and Genetic Conditions: Identifies newborn babies who may be at risk for select genetic, endocrine and metabolic disorders

  • Reproductive Health and Wellness: comprehensively addresses issues of reproductive health and wellness (including family planning) with a focus on populations in greatest need and identified priorities.  

  • School Nursing Program: supports the provision of quality health services in schools to promote student health and success.

Links to Telehealth Resources

  • Telehealth video series: The Midwest Genetics Network created a 3-part Introduction to Telehealth video series for families, and a follow-up video where families share their telemedicine experiences.

  • Telegenetics Infographic brochure: An Introduction to Telegenetics resource, developed by the National Genetic Education and Family Support Center.  

  • Telemedicine resource repository: The National Coordinating Center for the regional genetics networks has a resource repository that has a multitude of resources from across the country that have been developed regarding telemedicine.

  • NewSTEPS telehealth resources: The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs) is a national newborn screening resource center designed to provide data, technical assistance, and training to newborn screening programs and assist states with quality improvement initiatives.  

 
National and Regional Genetics Related Program Links

  •  Health Resources and Services Administration, Maternal and Child Health Bureau: of the U.S. Department of Health and Human Services, Health Services and Resources Administration, Maternal and Child Health Bureau;  Plans, develops, monitors, implements, and evaluates programs for genetic services. The programs assist Regions, States and communities to develop and strengthen health care and public health infrastructure for genetic services through promoting a close partnership among consumers of those services and public health programs, organizations, health care professionals, the scientific genetics community and the general public.

  • Midwest Genetics Network: a collaborative network of families, genetic service providers, newborn screening laboratories, and leaders in public health genetics from Illinois, Indiana, Kentucky, Michigan, Minnesota, Ohio and Wisconsin.    

Family Health History Tools and Related Links


Tools/Resources Online

Family Support and Advocacy Related Links  

Genetics Disease Related Links

  • Disease InfoSearch:  Powered by the Genetic Alliance, this site provides quality information from a database of thousands of conditions and thousands of support groups and foundations.

  • Genetics Home Reference: Your Guide to Understanding Genetic Conditions: provides consumer-friendly information about the effects of genetic variations on human health.

  • GeneReviews:  provides expert-authored, peer-reviewed disease descriptions presented in a standardized format and focused on clinically relevant and medically actionable information on the diagnosis, management, and genetic counseling of patients and families with specific inherited conditions.

  • National Organization for Rare Disorders:  a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them.

Preconception Health/ Birth Defects Prevention Related Links


Public Health Genomics Related Links

Newborn Screening Related Links