Sickle Cell Disease (SCD), a term to describe a group of inherited disorders of the red blood cell, is among the most prevalent genetic diseases in the United States (U.S.). While most common among blacks or African-Americans in the U.S., individuals with heritage from sub-Saharan Africa; Spanish-speaking regions in the Western Hemisphere (South America, the Caribbean and Central America); the Middle East; India; and Mediterranean countries such as Turkey, Greece and Italy; may also be affected. According to the Centers for Disease Control and Prevention, about one in every 365 African-American babies in the U.S. is born with SCD; and worldwide, approximately 300,000 babies are born with SCD each year.
The Ohio Department of Health (ODH) funds two grant initiatives under Sickle Cell Services Program related to sickle cell disease, sickle cell trait and other hemoglobinopathies: the Sickle Cell Initiative and the Statewide Family Support Initiative. As a public health program, the Sickle Cell Services Program works to:
Ensure and enhance the availability and accessibility of quality, comprehensive sickle cell services and care for newborns, children and adults.
Promote public/patient/consumer/family/professional education to increase awareness and knowledge about sickle cell disease, sickle cell trait and other hemoglobinopthies.
Increase strategies to maximize collaboration, coordination and utilization of all sickle cell-related services and resources in Ohio.
At the state level, the ODH Sickle Cell Services Program also:
Provides grant funding to four hospital-based and three community-based Regional Sickle Cell Projects (RSCPs).
Maintains sickle cell standards and criteria that serve to outline service and administrative components for RSCPs under the Sickle Cell Initiative.
Monitors and evaluates sickle cell services provided by the RSCPs.
The ODH Sickle Cell Services Program is part of the Genetics Section housed in the Maternal, Child and Family Health (MCH).
Ohio Department of Health
Sickle Cell Services Program - 6th Floor
246 North High Street
Columbus, Ohio 43215
Telephone: (614) 728-6787