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Sickle Cell Initiatives

Grant Initiatives

The Ohio Department of Health (ODH) funds two grant initiatives under the Sickle Cell Services Program related to sickle cell disease and other hemoglobinopathies:  Sickle Cell Initiative and Statewide Family Support Initiative.  Funds for both initiatives are composed of funds generated from a portion of the state Newborn Screening fee and distributed through an established grant application and selection process.

The Sickle Cell Initiative uses grant funds to (1) ensure and enhance the availability and accessibility of quality, comprehensive sickle cell services and care for newborns, children and adults and (2) promote public/patient/consumer/professional education about hemoglobinopathies.

The Statewide Family Support Initiative uses grant funds to support the provision of statewide training, education, advocacy and support/empowerment resources to individuals and families at risk or affected by sickle cell disease, sickle cell trait and other hemoglobinopathies and the professionals who serve them.

ODH Grant Funding

For more information about ODH grant funding or to view archived competitive Sickle Cell Solicitations, search for ODH grant funding on this website.

Note:  Any grant award made through the ODH Sickle Cell Services Program is contingent upon the availability of funds for this purpose.

 

Sickle Cell Initiative

Grant funds under this initiative are provided to (1) ensure and enhance the availability and accessibility of quality, comprehensive sickle cell services and care for newborns, children and adults and (2) promote patient/consumer/professional education to increase awareness and knowledge about sickle cell disease, sickle trait and other hemoglobinopathies.

Comprehensive sickle cell services for the purpose of this initiative include, but are not limited to:  (1) tracking and follow-up of abnormal hemoglobin results, including newborn screening and non-newborn test results; (2) hemoglobinopathy counseling and/or disease education for patients and families; (3) public and professional education and resource materials, training, outreach, and awareness activities specific to hemoglobinopathies; and (4) referral to specialized medical teams and resources for diagnostic, preventive, transition and evaluative management of sickling hemoglobinopathies.  Support of clinical services is not a funding priority for this grant initiative.

Qualified applicants for grant funds are tertiary care or community-based facilities with an identifiable, functional unit or program organized for and capable of ensuring the provision of regional comprehensive services for newborns, children and adults with or at risk for sickle cell disease, sickle cell trait and other hemoglobinopathies.  Funding consideration is given only to those applicants that demonstrate capability, experience and expertise in the provision of services as described above and whose programmatic activities meet or exceed the ODH Sickle Cell Services Program Standards and Criteria.  Only one agency is funded in each of the six (6) multi-county sickle cell service regions listed below:

  • Region I:  Adams, Brown, Butler, Clermont, Clinton, Hamilton, Highland and Warren

  • Region II:  Allen, Auglaize, Champaign, Clark, Darke, Greene, Hancock, Hardin, Logan, Mercer, Miami, Montgomery, Paulding, Preble, Putnam, Shelby and Van Wert

  • Region III:  Defiance, Erie, Fulton, Henry, Huron, Lucas, Ottawa, Sandusky, Seneca, Williams and Wood

  • Region IV:  Athens, Belmont, Coshocton, Delaware, Fairfield, Fayette, Franklin, Gallia, Guernsey, Harrison, Hocking, Jackson, Jefferson, Knox, Lawrence, Licking, Madison, Marion, Meigs, Monroe, Morgan, Morrow, Muskingum, Noble, Perry, Pickaway, Pike, Ross, Scioto, Union, Vinton, Washington and Wyandot

  • Region V:  Cuyahoga, Geauga, Lake, Lorain and Medina

  • Region VI:  Ashland, Ashtabula, Carroll, Columbiana, Crawford, Holmes, Mahoning, Portage, Richland, Stark, Summit, Trumbull, Tuscarawas and Wayne

The SFY 2019 goals for the Sickle Cell Initiative are:

A.  Promote the early identification of newborns, children and adults with or at risk for sickle cell disease, sickle cell trait and other hemoglobinopathies and facilitate their integration into systems of comprehensive service and care (which include treatment interventions, if applicable) that are available, accessible and culturally and linguistically appropriate.

B.  Increase the awareness, knowledge and skill level of Ohio professionals about the special health care needs and services related to hemoglobinopathies through the promoted use of education, training and outreach.

C.  Expand community education and public awareness of hemoglobinopathies and related program/services with special emphasis on meeting the needs and culture of unserved, under-served and/or emerging population groups.

D.  Increase the number of ODH grant-funded programs that integrate cultural and linguistic competence elements into their policies, guidelines, contracts and trainings.

Note:  Applicants that apply for funds under this initiative MAY NOT apply for additional grant funding under the Statewide Family Support Initiative.

 

Statewide Family Support Initiative

Grant funds under this initiative are provided to support the provision of statewide training, education, advocacy and supportive/empowerment resources to individuals and families at risk or affected by sickle cell disease, sickle cell trait and other hemoglobinopathies and the professionals who serve them.  Support of clinical services is not a funding priority for this grant initiative.

Qualified applicants for grant funds include any community-based 501(C) (3) agency/organization organized for and capable of the provision of statewide sickle cell services to the target population.  Funding consideration is given to those applicants that demonstrate capability, experience and expertise in the provision of statewide sickle cell services as described above and whose programmatic activities address the goals of the Statewide Family Support Initiative.  Only one grant is awarded in the state under this initiative.

The SFY 2019 goals for the Statewide Family Support Initiative are:

A.  Increase visibility of sickle cell projects and services in Ohio through implementation of statewide public and professional education and awareness activities.

B.  Increase the knowledge and support of Ohio individuals and families at risk or affected by sickle cell disease, sickle cell trait and hemoglobinopathies.

C.  Promote national, statewide and regional collaboration of groups, programs, and organizations that provide information, services and linkages to Ohio individuals and families related to sickle cell disease and other hemoglobinopathies.

D.  Increase the number of ODH grant-funded programs that integrate cultural and linguistic competence elements into their policies, guidelines, contracts and training.

Note:  Applicants that apply for funds under this initiative MAY NOT apply for additional grant funding under the Sickle Cell Initiative.