Sickle Cell Disease (SCD), a term to describe a group of inherited disorders of the red blood cell, is among the most prevalent genetic diseases in the United States (U.S.). While most common among blacks or African-Americans in the U.S., individuals with heritage from sub-Saharan Africa; Spanish-speaking regions in the Western Hemisphere (South America, the Caribbean and Central America); the Middle East; India; and Mediterranean countries such as Turkey, Greece and Italy; may also be affected. According to the Centers for Disease Control and Prevention, about one in every 365 African-American babies in the U.S. is born with SCD; and worldwide, approximately 300,000 babies are born with SCD each year.
The Ohio Department of Health (ODH) funds two grant initiatives under Sickle Cell Services Program related to sickle cell disease, sickle cell trait and other hemoglobinopathies: the Sickle Cell Initiative and the Statewide Family Support Initiative. As a public health program, the Sickle Cell Services Program works to:
Ensure and enhance the availability and accessibility of quality, comprehensive sickle cell services and care for newborns, children and adults.
Promote public/patient/consumer/family/professional education to increase awareness and knowledge about sickle cell disease, sickle cell trait and other hemoglobinopthies.
Increase strategies to maximize collaboration, coordination and utilization of all sickle cell-related services and resources in Ohio.
At the state level, the ODH Sickle Cell Services Program also: